Wednesday, February 23, 2011

Advocating by video

I know some special needs seem more daunting than others, and Down syndrome is often one that people shy away from. I don't think it's the day-to-day living that concerns most people, but worry about what will become of their child when he or she is older. Will he be able to live alone? Who will take care of her?

But these questions are not necessarily any different questions than I have for my children now. I believe at this point in time that they will all live independently. But who will care for them? Make sure they are on the right path? Watch over them, make sure they eat well and get enough sleep?

At some point, we have to trust that as the future unfolds, so will clarity for our children and their futures. This is not to say that we can't plan, but more that it is easier to plan as you get to know your child and what will work best for him or her. Many people with Down syndrome live more productive lives than some of the non-special needs adults I know. They graduate high school and college, find employment, live independently, and enjoy life just like the rest of us.

But here's the bigger question.

Are you really concerned for their future, or yours?

Are you worried that there won't be someone to care for them, or worried that it will still be you when you were wanting to be done parenting and enjoying the golden years of your life?

Are you willing to let a child die--unloved...alone...

Or worse, suffer through a life of indignity, waiting to die, doing that you can have the life you think is best for you?

Yes, it's harsh. And so is the reality of life for these children. Sadly, many of them are not adoptable because they are social orphans and their parents have not relinquished their rights. They will never know a family's love and care.

But what about the rest? What about the others, who only wait for someone to step step out in faith...believing that it is more worthy to serve the least of these instead of ourselves?


Faith said...

Just wanted to let you know -
I'm not sure what you were linking to on Julia's blog but it was a post about her 16 year old son.

Faith said...

Oh, yeah

Courtney said...

Thanks, Faith! They should be fixed now. :)

Tonya said...

You know, Courtney. This is exactly what I have been going through lately...just relinquishing my ideas of what I want to God's ideas of what He wants. And you're right, Down's is one of the scarier SNs but you're even more right that these children need the love of a family as much as any child.

Just praying and staying open:). Thanks for the nice, straight forward post. I always appreciate those.

shantroy123 said...

Beautiful post, Courtney - I will be bookmarking this one!

Christine said...

What a wonderful video. Thanks for sharing.